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Sept. '08
Newsletter
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September 10th, 2008
The Alzheimer's Disease
Cooperative Study (ADCS) and Pfizer are now
recruiting volunteers for a new clinical trial at
over 40 sites across the US, called the RI Study
(see
www.nia.nih.gov/Alzheimers/ResearchInformation/ClinicalTrials/RAGE.htm).
If you or family members are
living with the beginning stages of Alzheimer's
disease, you can help untangle its mystery.
Researchers are looking for people with mild to
moderate Alzheimer's disease to help discover
whether an experimental drug, called a RAGE
inhibitor (RI), may help treat memory loss.
You'll help advance the
understanding of Alzheimer's disease and be
carefully monitored by a team of doctors and nurses
at a research center near you.
The RI Study seeks volunteers
who:
*
Are age 50 or older
*
Have been diagnosed as having probable Alzheimer's
disease or dementia
*
Have a caregiver or family member who can accompany
the participant to each study visit
*
Are currently taking AD medication (Aricept, Exelon,
or Razadyne)
*
Do not have Type 1 or Type 2 diabetes
For more information and to find
a study site near you, go to:
www.nia.nih.gov/Alzheimers/ResearchInformation/ClinicalTrials/RAGE.htm.
For more information on other AD
research studies, call the ADEAR Center toll-free at
1-800-438-4380 (Monday-Friday, 8:30am-5pm Eastern
Time) or search for trials online at
www.nia.nih.gov/Alzheimers/ResearchInformation/ClinicalTrials/.
Learn to Communicate More
Effectively With Healthcare Professionals
As part of this year’s
National Family Caregivers Month in November, a FREE
Family Caregiver TeleClass to teach family
caregivers how to improve their communication with
healthcare professionals and to become better
advocates for themselves and their loved ones is
being offered. The Communicating Effectively With
Healthcare Professionals program will be a two-part
class, conducted by phone and Internet. Classes will
be held on the first two Thursdays in November —
November 6 and 13 — beginning at 2 p.m. Eastern time
and will last for one hour. All that is needed to
participate will be to call a toll-free phone
number. For family caregivers who wish to follow
along on the computer, there will be a corresponding
PowerPoint presentation. For registration
information for the FREE Communicating Effectively
TeleClass, send an e-mail that includes your name,
phone number, and e-mail address to
mailto:teleclass@thefamilycaregiver.org or call
800/896-3650.
Disability Resources
Available at the Click of a Mouse
DisabilityInfo.gov is an
award-winning federal government Web site designed
to provide people with disabilities access to the
information they need quickly and easily. The site
links to disability-related programs and services
from numerous government agencies and is designed as
a one-stop shop for those with disabilities who wish
to participate fully in the workforce and in their
communities. The site connects users to information
and resources on a wide range of disability-related
topics, such as: benefits, civil rights, community
life, education, employment, health, housing,
technology and transportation. The site includes a
state and local resources map, which makes it easy
to locate disability-related information in specific
areas. For more information, visit:
www.disabilityinfo.gov.
New
Booklet Addresses Financial Planning for Family
Caregivers
The Women's Institute for a Secure Retirement
(WISER) recently released a booklet for caregivers
called Financial Steps for Caregivers: What You Need
to Know About Money and Retirement. It is
designed to help caregivers identify financial
decisions they may face that can affect both their
short-term and long-term financial security. For
more information, go to:
http://www.wiserwomen.org/portal/index.php?option=com_content&task=blogsection&id=2&Itemid=29
Blog Explores Challenges
of Caring for a Senior
The New York Times recently
launched a blog called “The New Old Age” that
explores the unique challenges caregivers of seniors
face every day. Authored by Jane Gross, The New Old
Age is an examination of life as a caregiver. Gross’
years spent caring for her late mother lend
experience and empathy to her posts, which have
already covered a wide variety of topics. As
evidence of just how many people these issues touch,
the community response to the blog has been
tremendous, with more than 2,000 reader comments
posted in about a month’s time. Though these range
from heated policy debates to tips and consolatory
words, they all make it clear that the issues
addressed inspire passion in the readers.
Also included on the page
is a link to
The New Old Age Senior Housing Locator, a free
and comprehensive senior housing resource, powered
by SNAPforSeniors. Check out
http://newoldage.blogs.nytimes.com/.
Get a Free "Caregiver Kit" for Yourself or a
Caregiver You Know From AGIS.com
Many of us and our fellow
caregivers don't have the time to become experts and
to spend hours studying up on family caregiving. Sometimes
we just need Cliffs Notes. Many times we or our
loved ones don't recognize we are caregivers but
when we see the overview and checklists in front of
us, we see they are speaking to our situation. The
AGIS Caregiver Kit includes things like Assessing
Your Loved One’s Needs, Where to Begin Checklist and
10 Tips for Caregivers. Whether you have been
caregiving for a while or you are just getting
started, these topics can be timely and helpful.
Check out
http://www.agis.com/caregiverkit/ today and
then share this with other family caregivers.
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